We start with a medical update: Today has so far been a good day. I’m writing this with a blanket wrapped around me. The chest pain isn’t too awful. I’ve eaten something. I’m feeling up to writing this post. I have very little to substantially complain about.
My heart is for the moment stable. I’m responding to treatment, and doctors are hopeful I’ll continue to respond as well as I am, with my immune system holding strong and my bloodwork on the upside. This all gets punctuated with oxygen tanks and assistive devices, because while I’m declining, I’m not in the period of time the doctors refer to “The Decline”, which is the economics-sounding way of saying “the last few months of life.” I’m not there, I’ve got a few years between today and there.
I’m still not out of the woods, and frankly, short of miracles and transplant, I won’t ever be out of the woods. I’ve decided that if I’m going to be in the woods, I’m going to build a cabin there.
I want to introduce you to #ProjectCardiacPhoenix. The goal of this Project is to keep me going, not just financially, but also productively. One of the elements not often talked about with long-term illness (terminal or otherwise) is that it has a lot of downtime. You wait in a lot of offices, you wait for a lot of test results. You wait for things to change. And waiting is corrosive. Waiting is a forever-hungry beast with open jaws. It is corrosive to hope, which so often feels fleeting when you stack up all the medical updates, insurance bureaucracies, and physical issues.
See, one of the frustrating things, the gnawing mental shit, is that I’m 1000000% confident that I’m doing the best work of my career, lucky enough to do what I love to do for a living, and it’s just that the rest of my body is failing to keep up with my mind as it races along to being a better coach, editor, and writer.
I know so many of you have asked how you can help, and I have always struggled with guilt over giving you more than a polite answer, because I have felt like I was a burden to at least one other person since I was a small child. Now I’m an adult, and I still feel like a burden even talking about this, but as my excellent caretakers have all pointed out, “You need to do something while you can.”
Here are some ways you can help:
- I’m releasing FiYoShiMo 2.0 all this month on my Patreon. It takes all the material of FiYoShiMo 1.0 (available here) and expands on it. I’m so proud of the work I’m doing. It’s this sort of material that I think is among my best, and I encourage you to support it (and the tweetstorms and me) by checking it out. I know I’m a few days behind, and I’m going to push out several days of content in one blast over the next few days.
Later this week, I’m going to add donation buttons to the site.
Share my posts and tweets with your writer friends, your creative posses, and your social media tribes. There’s a lot here and on Twitter that I think can really help someone.
In 2017, Noir World will be Kickstarted. If you’re a fan of film noir, role-playing games, or my writing, please check that out.
Consider coaching if you’re a creative unsatisfied with what and how much you’re creating. It’s not just for motivation or just for writing technique, it’s all that and then some. It’s designed to help you become a better writer and creative one hour at a time. And yes, writer’s block, publishing woes, query letters, and editing are all topics that coaching covers.
Let’s end with a bit of good news. I spent the morning talking to doctors and laying out plans to get insurance off my back somewhat, as well as sorting out the changes to my Obamacare and soon-to-be-Trumpcare-question-mark medical paperwork. Everyone, myself included, is in relatively good spirits.
Please, help #ProjectCardiacPhoenix in any way you can.